EAGDA report on governance of data access

Publié le 10 juillet 2015, par Thérèse Hameau

The Expert Advisory Group on Data Access (EAGDA) was established in 2012 by the Wellcome Trust, Cancer Research UK, the Economic and Social Research Council, and the Medical Research Council to provide strategic advice to these funders on the emerging scientific, legal and ethical issues associated with data access for human genetics research and cohort studies. From October 2014, EAGDA is funded equally between the four partners.

EAGDA undertook an examination of data access mechanisms across genetic, epidemiological and longitudinal studies and released their findings in June 2015.